Son tells Mother, "You look like a boy!"

You may have saw the music videos and sang along, "...like a boy..." You know the ones about a woman reversing her role to act like the boyfriend who has hurt her--otherwise known as role reversal. You may not have thought much about these influential female artists trading places with men. They were communicating messages about how women can be just like men--they can get dirty and give them a dose of their own medicine, so we applaud! Those messages didn't mean anything much, right? Well, when the male side of you takes over the feminine, so much in fact your son says, "Hey mom, you look like a boy!" We have a problem!

One day while walking with my son, I was wearing the typical t-shirt and jeans, hair pulled back look I often wear. My son acted like this particular day it was a new look for me and commented how much I looked like a boy. He asked me, "How come you don't wear lipstick, where are your earrings? and how come you don't wear a dress?" I told him I do wear those things, but I didn't know when was the last time I looked like my feminine self. I mean I had been raising boys for awhile now and I guess I just took on some of their styles. I was trying to remember when I traded pants for a dress, then it dawned on me that I gave that up when one too many spots showed up on my clothes from sticky fingers and tear stains. I mean, to me, it was all a bit much for my hectic schedule with them to get all dolled up! But you know what, he had a point, I looked into the mirror one night and stared back at the reflection of "the boy me" and I didn't like it. I was a mother who looked like a boy. I had allowed four male personalities including the ex and the current father's styles to dominate my taste in clothes--it was time for a change.

I could have very well just been happy with what I saw, and told my son, "Why don't you put on a dress and see how it feels?" But he had a enough sense to know that obviously his mother wasn't herself these days. He remembered the feminine me and his alarm alerted me that I was slipping into a person that wasn't really reflecting me. I think sometimes that's what we need, someone who is going to not be accepting of every little thing we do and say. They serve as our warning when we find ourselves falling into some territories that could quite possibly be misconstrued. Maybe that's why some of those lesbians I ran into while walking were so friendly with me.

It seems these days it's all too cool for women (and girls) to wear what men wear, do what men do and even take a man's woman from him. The line between female and male seems to be rapidly blurring. A blending of the feminine and masculine is what some of the "powers that be" want. For some, they revel in the madness of having both a man and a woman in one body complete with supernatural and robotic abilities--a super human of sorts. So what does all of this have to do with the mother who lives in a small town out in the midwest? Well, if she is dressing her son like a girl and treating him like one then taking her daughter and treating her like a boy--alot! She most likely was influenced by the following: her own "tomboy" past, the things she has watched or read that reverse roles, been hurt or sexually abused by someone who she trusted or think that this is what is best for her children. She may have reasoned in her mind, "I see nothing wrong with my son carrying a purse or loving the color pink" as one woman told me. You see, it's all one big experiment orchestrated by people who have spent a lot of time studying the psychology of the brain. The average person doesn't like to read much less study about how to manipulate people into furthering one's agenda. These masterminds start their quest of study by simply asking one question that has a domino affect on others, "What might happen if we raise a boy to act like a girl and a girl to act like a boy?" Before long, you have a society of confused, peculiar people who have absolutely no morals! Once these children become mature there most likely will be a tug of war between what is natural to the female/male and what is unnatural. There is no need for a parent to be saddened even angered by the outcome, he or she created the mess. Then what do most people who create messes do? Try to package them in a way that we will swallow them--I don't think so!

by Nicholl McGuire

Top Ten Things My Sons Have Done This Summer that Drove Me Batty

In no particular order of importance the following are the issues I had to repeatedly handle and remind my hard-headed sons:

1. Don't come from outside and go into the refrigerator with dirty hands.
2. Refrain from discussing or participating in certain bodily functions at the dinner table.
3. Leave your brothers alone!
4. Avoid listening or watching anything that is sexual in nature. (Too bad I couldn't censor the prostitutes in the entertainment industry or walking along the street!)
5. Stop butting in when adults are having a conversation.
6. Read, write and learn something other than Nintendo DS. (I scheduled time during the day for all to read and complete worksheets.)
7. Stop blaming the other guy when you know you did it!
8. Don't lie to me!
9. Did you do your chores?
10. Did you brush your teeth, wash your face, and take a bath!

May the countdown back to school begin...

Nicholl McGuire

My Melt Down - A Mother's Reflection of Anger

A Mother's reflections of wild emotions experienced after her child's death...

What now? My beloved child is dead, yet the world still goes on. No one seems to understand. Everyone wants me to be O.K. "Be happy again!" They want me back to normal, but I don't believe it is entirely out of concern for my welfare. No one knows how to deal with a grieving parent. Everyone is on edge and believes that if they mention my son's name, it will upset me even more. Or, worse it will upset them. Other parents come with their own set of paranoia and fears; they think, "What if something happens to my child?" Friends and family want the "old me" back, some say they can't be at ease around me any longer. Some have gone out of their way to avoid me, to the point of turning their shopping cart the opposite direction in the grocery store aisle... just so they wouldn't to have to speak to me! Still, the few friends who do call say, "We don't like to see you like this. You have to get over it. Go on. You're not fun anymore!" The worst comment I have received was from an older woman at church who said, "I'm so sorry Dear. I know how you feel, my beloved Barney died last year!" (Barney is a DOG! Her Yorkshire Terrier! A damn dog!!!) Don't misunderstand, I love animals. I am a pet lover/ owner and PETA member! Although, I don't understand how could someone compare the loss of a dog to a child? I love my dog too, but I didn't give birth to her. A dog is a wonderful companion. My child however, is part of me, forever connected to my soul. As a Mother; I nourished his body with my own for nine months, he grew under my HEART! It is not the same!

The list of insensitive comments goes on and on! It is better just to turn the phone off. I stopped returning phone calls, emails, or even answering the door! PJ day turned into PJ (pajamas) weekend and I found myself in an internal battle whether to shower or go back to bed. I silently screamed, "I just want to be left alone!" Yet, the next moment I yearn for someone to be here to listen and understand. Wishing for someone who would not criticize or judge, just allow me to grieve naturally! (Whatever, that happens to be at the moment!) I have days where all I do is think of my departed child, I search through the photos and drag out more boxes of precious memories. Then I have other days where, "I don't want to see anyone or anything that reminds me! Not necessary of him, just that he's gone!" My emotions fluctuate like the changing winds. One moment I am calm and serene, in a state of denial. The next moment, "I am so mad, No matter what, I feel so desperately alone! I want to die, too. I can't breathe! I could KILL somebody!"

Unless, you are a grieving parent you cannot possibly understand the range of sensations swirling so intensely inside. So wild are these contrasting emotions that it feels as if I was a violent volcano just waiting to erupt! Who do you complain to? Who do you scream to, "It not fair. It's too soon. I want my baby, back!" Society dictates that we remain calm, even reserved. Yet, when a child dies, there should be some amendment, some forum or some way to SCREAM out... "I'm as MAD as HELL and I won't stand for this! It's not FAIR!" But, alas... Grieving parents usually end up suppressing their feelings or lashing out indiscriminately.

Which brings me to my personal outburst. I decided to share this story, because my grief counselor, Joe asked me if he could share my story with other grieving parents he works with. He felt it was a perfect demonstration of spontaneous rage which while is not a good thing; it is according to Dr. Joe, "Perfectly normal!"

Here's my disclaimer: To hear Dr. Joe tell it, you would have thought I hogtied and pulverized a poor defenseless geriatric. (LOL). Here's Dr. Joe's version according to his clinical notes he shared with me.

Received call from client (Dawn), who was hysterically crying and sobbing, while driving. Client had a fight at a gas station. She scared a poor old woman half to death, who was "not getting done fast enough." I could hear the frustration and terror in her voice! Provided emotional support by having Dawn pull over and practice breathing techniques to calm herself. Advised Dawn to go straight home and contact me later if necessary. - Grief Specialist

I certainly don't like the way my grief counselor retells my story. That doesn't show me in the best light, but it is his impression. I still tell him, "It was an argument, not a fight! To explain further, this 'fight' took place only a few weeks after my son, Jimmy died of an Epileptic Seizure while away at college. I was still vacillating between denial and rage. Most days I barely existed. It was in the "Stop... the World; I want to get off stage!" I was barely functioning... I slept on and off all day long, but lay awake throughout the entire night with debilitating heart-stopping grief!

Although, I selfishly wanted to join my son in death, I had other responsibilities. Some I could ignore like taking a leave of absence from work; suspended my college classes (taking a semester off) and allowed my perfectly clean home to be a lot less clean and perfect. Although, as a Mother of four, I could not suspend Motherhood. While I kept tabs on my two grown sons, trying to reach out and offer comfort, I could not ignore the needs of my daughter. Katelyn (age 13 years old) needed her Mommy more than ever. After all, she too was suffering from the death of her big brother. My concern for my daughter, turned into obsession. At thirteen, she really is a very capable young lady. Yet, through my distorted haze of grief I became overly concern about her welfare. I was so full of anxiety that my shoulder muscles tensed, my heart race and I began perspiring profusely. Yuck, I was a dirty sweaty mess. I usually pride myself in my appearance, this in itself was upsetting to me, as a woman I tend to be a bit vain.

Back to the gas station, argument... Not Fight! It was one of those days when I didn't shower, eat or function. I honestly don't remember what I did that day until I looked at the clock. "Damn it!" I was late picking Katie up from school. She had forgotten her cell phone at home and the school's phone line rang busy. I had no way to reach her and tell her I was running late. Dread rang throughout my body. All sort of scenarios ran through my mind. What if she starts walking? What if she goes home with Zoey? Is she stressing about this? Under normal circumstances, Katie is more than competent, but in my bizarre confusion... I imagined her crying and upset... feeling lost and abandoned!

On the way to the school I realized I didn't even have enough gas fumes to make it down the road. I had to stop at the first gas station. Once, there I found lines 3 and 4 cars deep for every pump. "Oh, No... Katie! She needs me! I can't reach her!" I tried calling the school again, but I think they purposely take the phones off during dismissal. Anyway, I was working myself up to a full blown panic attack. My heart continue to race, I could barely breath, my hands were sweaty and most. I kept thinking, "My child needs me and I'm not there!"

I literally prayed for a pump to be available. Finally the old woman directly in front of my car finished pumping her gas, put the pump handle back and screwed her gas cap back into place. "Thank God!" I said to myself and I readied myself to pull up to the pump. I couldn't believe what happened next. With a gas station over run with motorist, she left her car to walk across the median to chat with another old woman. They casually laughed and talked while the second woman began to pump her gas.

This is what happened next:
1) I honked.
2) I was ignored.
3) I honked again.
4) The two ladies looked and laughed at me.
5) I honked again.
6) I was ignored, AGAIN!
7) I rolled down my window and said, "Please... I am in a hurry."
8) The 1st old lady reluctantly returned to her car.
9) I waited.
10) The old lady looked in her rear view mirror at me and laughed some more.
11) I honked.
12) She laughed, AGAIN.
13) I got out of the car. I knocked on her window and begged, "Please, I am very late getting my
daughter from school!"
14) I returned to my car to ready myself to pull up to the pump again.
15) She started putting on make-up.
16) I gasped in frustration and disbelief!
17) Another, pump opened up and I maneuvered over to it.
18) I ran into the gas station to 'prepay' for my gas.
19) The old woman was still sitting in her car, laughing at me... Not moving.
20) I took my car keys and threw them past her windshield. At least that's what I told the police.
21) Actually, they hit the top of her car and bounced off.
22) I saw her writing down my tag number.
23) I finished pumping my gas and left to get my daughter.
24) I began crying hysterically.
25) I couldn't believe how cruel the world was.

By the time I arrived at my daughter's school, I was a mess. Twenty-five minutes had passed and she was busy talking and laughing with friends. She didn't even seem to notice how late I was. Katie was fine. I however was inconsolable and frantic. I called Dr. Joe, and he tried to calm and console me. His priority was to get me off the road. I pulled into a park and Joe just let me 'Cry it out.' He made me promise never to drive when I felt this much anxiety, he said have a "Stay at home day!"

In the end, I created this crazed situation because of my irrational paranoia due to overwhelming grief. It just hit me all of a sudden. I made a bad situation worse. Within an hour of leaving the gas station, I received a phone call from the local police department. They were very alarmed because the old woman called and claimed that I beat on her window and tried to get into her car to harm her! I explained that, I was very emotional because of my son's death, but I assured them I made no attempt to enter her car or harm her in anyway. I even suggested they retrieve the gas station video, which would clearly show I never touch her door handle. I was informed that they had already been to my apartment, (while I was crying hysterically at the park). They told me that my apartment manager confirmed the death of my son and that they would not be pursuing this further. Whew!

In retrospect, even though anyone would have been upset by the encounter with this old woman, I allowed the situation to push me over the edge. Unfortunately, due to my grief and desperate state of mind, I was unreasonably concerned for my daughter's welfare and I took the rude old woman's actions, personally!

Can be reached at: dawnmariesaul@yahoo.com

Transferring Skills From Motherhood Back to the Workplace

You've taken a career break for children and now you're returning to work. Whilst many mothers feel that time out automatically equals losing their career skills, in fact the very opposite can be true.

Motherhood is, in fact, practically guaranteed to increase your skills set.

The transferable skills you develop as a parent are no different in variety or value to the type of skills that can be acquired during other key stages of your life and career, such as marriage or your first full-time job. Being a stay-home parent is, after all, absolutely one of the greatest challenges there is.

Like any form of care, childcare takes it out of you emotionally, physically and mentally-especially when the children are your own! Successfully looking after your children involves continuous multi-tasking, managing your energy levels and maintaining a laser focus, not to mention clear goal setting, calmness in the face of emergencies and the ability to think outside the box.

It's really not a stretch to see how all of these skills are vital in a busy, pressurised workplace.

In an ideal world, you would be equally adept at all the above competencies. In reality, the skills that can be acquired through parenting are so innumerable that no one will have them all. Even if you did, not all of these aptitudes will be appropriate or necessary to your particular line of work. So how do you identify which skills you've picked up and whether or not they'll be useful in your work life? Here are a few ways:

• Get feedback from others around you as they will see how you've developed.
• Self-reflection -take time to think about which new skills you've developed. Try making a list of actions you take during the week and then listing the skills they deploy. Consider the settings, pressures and essential outcomes. What did you do, why did you do it and what was the result? Where else could these actions be valued?
• Think about which skills you're using whilst you're actually using them, then consider how they could be used elsewhere. For example, the next time you're making up a bedtime story with your child, acknowledge the fact that this takes imagination and communication skills, which can be converted into workplace creativity and efficient teamwork.

Of course, it's all very well thinking about using your new skills once you're back at your old role, but what if you're not actually going back there? What if you're instead looking for a new position, or even career? The lessons you've learnt will be just as valuable. Creatively use your parenting experiences to sell yourself to prospective employers. Consider seeking out voluntary opportunities where you can use your newfound skills in the wider world as well as build up experience relevant to your desired career path. Get involved with a charity or offer yourself pro bono work to those you know. Training and professional development are also options which must be seriously considered; it's worth investing in yourself.

Here are some more tips for pursing a new career direction after a career break:

• A key element of self discovery is to review past achievements and the especial skills demonstrated in effecting those successes.
• Ask yourself what your passion is, then consider how to get paid for what you love!
• Get hold of tools such as Tom Rath's StrengthsFinder; the book is available online and in good bookshops
• Gather more information about your specific career interests by networking and making contacts. Don't be afraid to ask plenty of questions. If you decide to set up your own business, take huge confidence from the fact that motherhood has definitely taught you how to juggle tasks and seize opportunities!
• To brush up on specific skills before returning to work, there are plenty of ways to do this.
• Take advantage of the many adult learning opportunities there are at local further education colleges. A directory such as Hot courses gives you an idea of the variety of classes, subjects, time frames and price ranges.
• Get a friend to train you in a specific skill in exchange for you doing something to help them. Practice at home and go to the library to get the relevant books out if necessary. The Dummies series covers almost everything.
• Still not confident that your parenting skills are going to help you back at work? Don't expect too much of yourself-take everything one step at a time, in bite-sized chunks.
• Recognise that some goals need to be worked towards and will not be arrived at with one leap. It doesn't matter how slowly you go as long as you don't stop. In the words of the late American football coach Vincent Lombardi, "Winners never quit, quitters never win".
• Reflect on those other key stages of your life where testing circumstances demanded reasoned confidence in one's own ability and where success was achieved.
• Focus on networking to find people who've done what you want to do and then talk to them about how they did it. Ask intelligent questions.

Yes, identifying and transferring your parenting skills to the workplace is not an automatic process, but with enough thought, preparation, patience and action it is possible. And the real prize? Absolute recognition that taking a career break to parent children can truly be one of the best career moves you will ever make!

Mary Cope is a Career Guide at Position Ignition, a very personal careers advisory service for professionals. Position Ignition works with individuals through their careers transitions supporting them through to achieving their goals. Mary is interested in taking careers advice to the next level!

Website: http://www.positionignition.com

Blog: http://www.positionignition.com/blog

Struggle and Triumph - Mother and Daughter

I am the proudest mother in the auditorium. I sit among many other proud mothers, fathers and guests. It is my daughter's first ballet recital. I watch my daughter dance onto the stage with determination, pride and grace. I am in awe of my daughter.

My daughter, Lisa, is 30 years old. She is a fighter. She has a congenital muscle disorder. Her ballet class began as a substitute for traditional physical therapy. It has become therapy for her spirit as well. I sit in the front near the stage and I think back, back through the years of her life...

Her story began in the wee morning hours of February 19th, 1974. She entered the world following a full-term, unremarkable pregnancy. Lisa was a healthy infant weighing in at a chubby eight pounds eleven ounces. She appeared normal in all ways. Lisa was my second child. Her sister was four at the time of Lisa's birth. During infancy, Lisa had a minor incident of swallowing difficulty that quickly subsided. For awhile, everything seemed sunny and bright in our lives. Soon, however, I began to notice that Lisa could not hold her head up as well as other babies her age. She seemed almost like a rag doll. Her developmental milestones were becoming delayed. Lisa finally rolled over on her own at eight months. Soon, she was nine months old and could not sit up. I began to worry. When I brought my concerns to our pediatrician, he said that I should not compare my two daughters. So, I waited.

However, I truly believe that mothers know when something is amiss with their child. Lisa finally sat on her own, but leaned uncomfortably forward. Her arms and. especially, her wrists were noticeably thin and weak. Around her first birthday, we focused on crawling. Her sister tried demonstrating how to crawl. We had no luck. Lisa's arms could not support her weight. Now, I was past worried. Back we went to the pediatrician and he still insisted that we should wait and see. At this time, the doctor mentioned "hypotonia", a word I had never heard before. Hypotonia means weak muscle tone. Hypotonia would become the enemy. Wait and see was not one of my strong points. Shortly before her first birthday, I began to notice Lisa's eyes were rolling around. So, the first specialist on our long journey would be the eye doctor. Lisa has gone to the same ophthalmologist for 26 years. He became a great friend and supporter. Lisa's eye muscles were also weak from hypotonia.

To this day, she can only focus with one eye at a time. We celebrated Lisa's first birthday and still, no crawling, standing or walking. Her neck and arms seemed weak. She was alert and responsive in other areas. Panic was setting in. Urged by my relentless questions of when, why and how, Lisa's pediatrician was finally ready to take action. We were on our way to St. Christopher's Hospital for Children in Philadelphia. We saw several specialists and blood tests were run. We did not get a real diagnosis at that time. They said she was developmentally delayed in fine and gross motor development and appeared hypotonic. I heard the hypotonia word again! They explained that she had weak muscle tone in "all" her muscles.

At age two, Lisa was referred to our local Easter Seal Society where she received physical therapy and began making slow, but steady progress. Easter Seal's program literally rescued us from despair. We made many more trips to St. Christopher's Hospital receiving no additional information. At one point, a doctor told me that she might never be able to read. Of course, I was determined that Lisa would prove him wrong. She became an avid reader. At age three, Lisa was tested cognitively by Easter Seal's psychologist who was on the staff of Temple University Hospital. He told us she was about six months behind the norm. He informed me that she could begin East Seal's preschool on a trial basis for six months. I wondered immediately what he meant by trial basis. Did the psychologist think she would not fit into the program? I really let my imagination run away with me and wondered what I would do if she could not attend Easter Seal's school. Lisa began school and thrived and I received much needed support from the staff and a wonderful group of parents. After one month, the school psychologist let me know how great she was doing and her placement would be permanent. Along with preschool, she received physical, occupational and speech therapy. She made great strides but never did master crawling.

It was very difficult for Lisa to speak as her facial; mouth and tongue muscles were very involved. Her tongue protruded when she was tired. I learned that she would need intensive speech therapy. We, also, noticed that her head tilted to one side and that one shoulder was held higher than the other, this due to curvature of the spine. This has left her with a chronic neck problem. Also, one toe on each foot protrudes slightly. Despite all of the obstacles in her path, Lisa remained a healthy, happy, cute little girl. I began taking her to clinics at Easter Seals to see their specialists. At one of these clinics, held while she was in preschool, we got the diagnosis of benign hypotonia. In other words, she had weak muscle tone that would not get progressively worse. She remained at Easter Seals through kindergarten. A few months before her fifth birthday, Lisa walked across her classroom floor to see Santa Claus. Everyone applauded her and I could not contain my tears of joy.

Around this time, I was divorced from Lisa's father and soon remarried a wonderful man who adopted both my daughters. With my new husband and his three daughters; Lisa, now, had a large caring family and extended family. Bob was wonderful with Lisa and fought her battles right along with me. Our next challenge was the public school system. School was a never ending battle for Lisa's rights and best interests versus the school district's lack of time, money and flexibility. My husband and I became advocates for Lisa. Our request that an extremely heavy bathroom door be modified for Lisa's use, in turn, helped many of her classmates. Many times, we felt that teachers just didn't want to go the extra half-mile for Lisa. And more times, that not, the school staff had not even taken the basic effort of reading her file.

Middle school was her most discouraging time and mine. Children at that age can be very cruel. Additionally, at the start of middle school in 7th grade, Lisa was placed in the same class with children having severe emotional and behavioral problems. Soon I discovered that this class had only one reading group which was at the first grade level. Lisa could already read way beyond that level. I told the special education administrator that this class was totally unacceptable for Lisa. Her teacher and the administrator disagreed with me.
This was a very stressful time for us. I believe that reading is a fundamental tool for life. If you can read, your horizons are limitless. I finally convinced the school psychologist to help me. But, It took three months to move Lisa out of this class.

In high school, the attitude of the other students improved. However, we soon found that Special Education in high school did not include your basics such as; history, geography, English, spelling, science, math or discussion of current events. In our school district, the emphasis was put on obtaining employment after high school in the food service industry. I fought to have Lisa mainstreamed in several subjects. I felt that she should have every opportunity to reach her own potential not the school district's idea of her potential. She did very well in these classes which contributed much to her self-esteem. However, she received little or no support from the special education staff. Several teachers had discouraged our endeavor to have Lisa mainstreamed and voiced their opinion, in Lisa's presence, that she would fail. The lack of appropriate placement, lack of individualized academic goals, and a discouraging teacher attitude cost Lisa a great deal. Despite all the problems, Lisa graduated from high school with her class and attended the senior prom.

I am a firm believer in continuing education and am still purchasing educational software for Lisa to make up for the school district's lack of emphasis on basic academics. Lisa loves to read, loves history, and speaks out on issues relating to the disabled. We, determinedly, include Lisa in family discussions of current events and political views.

In 1997, we took Lisa to the Hospital of the University of Pennsylvania for an updated exam and genetic testing. Her doctor was a neurologist/geneticist. He confirmed her diagnosis as Benign Congenital Hypotonia (BCH). She was the first adult he had ever seen with this disorder. He told us that doctors normally see babies born with this disorder. Usually, the disease worsens and the child's weak heart and lung muscles collapse before their second birthday. However, our neurologist feels that since Lisa has continued to grow stronger that her disease will remain benign. Lisa's genetic testing was negative, however, that does not necessarily mean that this disease is not genetic.

Far from it. Some distinctive attributes of this muscle syndrome appear to be familial. Lisa has a nasal sounding voice with a high palate in her mouth and, after examination, so do I. I very much wanted to pursue the cause and the genetics of this disease. Therefore, our neurologist sent Lisa for a brain MRI. Through this, we discovered that she had a tiny area in her cerebellum that was empty. It is the precise area of the brain that controls muscle tone and fine motor development. The neurologist suggested that I should consider having a brain MRI which I did. My MRI was negative. Officially, the geneticist would neither confirm nor rule out that this disease is genetic in nature. However, he led us to believe that Benign Congenital Hypotonia is genetic. Lisa and I both support stem cell research and feel hopeful that we will soon see great progress made in treating brain and spinal cord injuries and malfunctions.

Today, Lisa is a thin young lady weighing approximately 100 pounds with a thin face. She has speech and fine motor impairments. However, she wanted to work and we did not want her sitting at home with nothing constructive to fill her time. We received help from the PA Department of Vocational Rehabilitation. They arranged for her to have a job coach to take her on interviews, help fill out applications and generally run interference with prospective employers. Her job coach became our good friend.

Lisa works at Blockbuster Video part-time, four days a week and loves her job. Her ballet lesson once a week is a high point for her. Lisa has been a bridesmaid in all of her sisters' weddings and helps care for her 13 nieces and nephews. Her social life is lacking and transportation is sometimes a problem. She and I both get disappointed, frustrated and even angry. So, we try to take a break from the problem and then continue our struggles again. We do not recognize quit or give up.

I will continue to support community, school, state and federal programs that help Lisa and others like her. Lisa and I feel that we need to demand rights for the disabled and support continuing research with the hope of making the quality of everyone's life better.

As the mother of this extraordinary prima ballerina, I have had many wonderful, life-altering experiences and met many remarkable people. It has been extraordinary! This is our story. Lisa and I hope that it will help someone else.

For More Information:
Department of Neurology
Hospital of the University of PA
3400 Spruce Street
Philadelphia, PA 19104

Easter Seal Society
230 West Monroe Street
Suite 1800
Chicago. IL

The Benign Congenital Hypotonia Site
http://www.lightlink.com/vulcan/benign

Donna Katzmar is the mother of four adult daughters and grandmother of nine. She is an activist for "special" needs children and adults.